Amy's London Marathon 2023 page

Amy Curwen is raising money for Fowler's Syndrome UK
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London Marathon 2023 · 23 April 2023 ·

Fowler’s Syndrome UK is a registered charity (1196903) that works to raise awareness, promote education and increase research into Fowler’s Syndrome, with the aim of reducing diagnosis time and improving patient care nationwide.

Story

In a moment of insanity, in October, after spending 6 weeks
in hospital over the course of summer, I signed up for the London Marathon.

In a further moment of insanity, after getting a place, despite only being able
to run for 30 seconds, I decided I was going to do it.

Not thinking that was enough, I also decided in mid-January to give up
chocolate until the marathon.


So on 23rd April I will be running the London Marathon for Fowler’s
Syndrome UK.


FSUK is a charity very close to my heart as I myself suffer from Fowler’s Syndrome.


In 2013 at the age of 19 my life changed overnight, as my bladder stopped working. After 6 years of suffering with pain, spasms and constant infections my Fowler’s lead to me having my bladder removed  and a Urostomy Stoma formed in 2019

Fowler’s Syndrome is a rare condition affecting only 1 in
500,000 and only women. It is a urethral sphincter dysfunction that causes urinary retention. Fowler’s can cause debilitating issues such as spasms, infections and pain.

Donation summary

Total
£2,174.91
Online
£2,174.91
Offline
£0.00

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