Anna Kielpinska
For our daughter, Amy Nicole....
Fundraising for Cardiomyopathy UK
Story
From Anna and Danny......
Hello and thank you for taking time to read our story. This is all about our precious little girl, Amy.
We hope that after reading this, you will better understand why we have decided to support the cardiomyopathy charity, and also hope you will help us to raise as much money as possible to find a cure one day, and help other babies, children and adults in future months and years.
**********************************************
We were very excited and looking forward to welcoming our baby into the World who was due at the beginning of May 2014, but on the 4th April we received devastating news.
We were told our little girl had a life threatening condition and she may not even survive to the birth date due to the rarity and scale of her Hypertrophic Cardiomyopathy. Our world just collapsed into pieces and even now writing about it, I can't breath from the pain we felt and still feel.
However against all of the doctors expectations, she was born on Wednesday 23rd April 2014 looking well and healthy just looking perfect ...We were so proud of her for being such a strong little girl and for giving us a chance to meet her.
Despite many tests and scans, she defied all logic and continued breathing and living like any other baby, albeit with tubes and wires everywhere, for over a week wondering what all of the fuss was about.
On Saturday 3rd May she deteriorated and needed to be put onto a ventilator - a horrible experience in some ways as she needed a breathing pipe, but a beautiful experience in others as she was instantly calm and back to being able to breathe again.
Unfortunately, she struggled with this and as parents, we hated seeing her being so restricted so after another 11 days, we agreed to bring her home.
For the last minutes of her life, she was where she should be, at home In her Daddy and Mummy's arms and with her big sisters in our garden with the sun shining down on us.
We miss her very much!!! :-(
The doctors told us they had never seen this before and especially not in neo-natal patients and we learnt a lot about how they are trying to detect early signs and prevent this from being such a problem in future years.
Myself and my partner both realised how much they DON'T really know about this now, and how funding can help them discover the breakthrough that just may allow them to prevent or at least cure this in future months or years..
If you are able to help, please please do!
Thank you from Anna and Danny
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.
Hello and thank you for taking time to read our story. This is all about our precious little girl, Amy.
We hope that after reading this, you will better understand why we have decided to support the cardiomyopathy charity, and also hope you will help us to raise as much money as possible to find a cure one day, and help other babies, children and adults in future months and years.
**********************************************
We were very excited and looking forward to welcoming our baby into the World who was due at the beginning of May 2014, but on the 4th April we received devastating news.
We were told our little girl had a life threatening condition and she may not even survive to the birth date due to the rarity and scale of her Hypertrophic Cardiomyopathy. Our world just collapsed into pieces and even now writing about it, I can't breath from the pain we felt and still feel.
However against all of the doctors expectations, she was born on Wednesday 23rd April 2014 looking well and healthy just looking perfect ...We were so proud of her for being such a strong little girl and for giving us a chance to meet her.
Despite many tests and scans, she defied all logic and continued breathing and living like any other baby, albeit with tubes and wires everywhere, for over a week wondering what all of the fuss was about.
On Saturday 3rd May she deteriorated and needed to be put onto a ventilator - a horrible experience in some ways as she needed a breathing pipe, but a beautiful experience in others as she was instantly calm and back to being able to breathe again.
Unfortunately, she struggled with this and as parents, we hated seeing her being so restricted so after another 11 days, we agreed to bring her home.
For the last minutes of her life, she was where she should be, at home In her Daddy and Mummy's arms and with her big sisters in our garden with the sun shining down on us.
We miss her very much!!! :-(
The doctors told us they had never seen this before and especially not in neo-natal patients and we learnt a lot about how they are trying to detect early signs and prevent this from being such a problem in future years.
Myself and my partner both realised how much they DON'T really know about this now, and how funding can help them discover the breakthrough that just may allow them to prevent or at least cure this in future months or years..
If you are able to help, please please do!
Thank you from Anna and Danny
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.