Sullivan’s Heroes is a charity offering support and financial assistance for families raising essential funds for vital home adaptations for a disabled child, to continue to care for their child at home, safely and with dignity.

Sullivan's Heroes have come on board to support us in raising further funding required for the work at our home. We were delighted to hear about Sullivan's Heroes who help families that are in our exact situation. Our initial target of £10, 000 was our best, realistic guess at what we might be able to manage on our own. However, the shortfall between the finances we have and the cost of the essential work is still much greater. We are hopeful that now with the support of Sullivan's Heroes (and beyond), that we might be able to raise funds closer to the actual amount that we still need. 

Ana-Lily Rose is a 9 year old girl with a severe physical disability and complex needs. She has a very rare, life-limiting genetic condition, effecting her UBA5 gene. She is completely dependent on us for all her needs. As she gets older and bigger, caring for her on a daily basis is becoming ever more challenging. Each piece of equipment for her sitting, standing & other positional needs gets bigger too. The family home has run out of space!

Ana-Lily’s home is in need of major adaptations in order to meet her needs in a more manageable way. She needs a new bedroom, wet room, hoist, through floor lift, more living space and lots of storage for her equipment and medical supplies! 

Ana-Lily spent 6 months in hospital (August 2019-January 2020) following a life threatening illness. She is still recovering but has made amazing progress so far. We are blessed to see her smile again and hear her famous giggles! 

They say it takes a whole village to raise a child! I hope you will become part of our village! Thank you 🦋❤️