Andre's page
Participants: TEAM JED
Participants: TEAM JED
Bupa Great North Run 2011 · 18 September 2011 ·
Hello and welcome to my Team JED sponsorship page. I will be running on behalf of my son’s friend Jed's charity - the Muscular Dystrophy Campaign, in the GREAT NORTH RUN on 18th SEPTEMBER 2011, 13 miles (half marathon). Not being a runner … it is going to feel more like a marathon!
Team JED has been set up in honour of Jed who has Ullrich Congenital Muscular Dystrophy (UCMD). Jed’s father decided to set a target to create Team JED with 31 runners for the 31st Great North Run and raise money for his charity the Muscular Dystrophy Campaign. Our overall target is £31,000 (31:31:31), the numbers just seemed obvious !! Having spent many fabulous days with Jed and my son on the sports field where Jed's enthusiasm, despite his muscle-wasting disease, was inspirational, it was a "no brainer" for me to join Team JED.
A little about Jed. In March 2008, when Jed was 8 years old, he was diagnosed with UCMD which is a degenerative muscle-wasting disease that causes progressive muscle weakness, tightening and contractures in the muscles and limbs which leads to mobility and respiratory problems. Depending on the severity of the condition many children become wheelchair bound by early teens with debilitating mobility restrictions in early adulthood. Jed is now 11 and his condition is progressive, though he is doing well, there still remains no treatment or cure. It limits everything he can do physically, from walking, running and any sporting activity to the daily struggle of going upstairs. He is an amazing little boy, whom despite the challenges facing him in life lets nothing get in his way. His strength of character is awesome and Jed is known throughout his circle of friends for always having a smile on his face.
Thank you so much in advance of your donation, for supporting Jed and his charity the Muscular Dystrophy Campaign and our endeavours to raise sponsorship to fund future research to find a cure. If you want to learn more about Team JED and the MDC please visit Michael's TEAM JED page at www.justgiving.com/TeamJED.
My kindest regards and gratitude
Andre
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