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I became interested in Patients with Syringomyelia and Chiari malformations when I did my PhD in post traumatic syringomyelia in Sydney, Australia with Marcus Stoodley. I have continued to be involved with biomedical engineers trying to understand the mechanics behind the problem. As a consultant neurosurgeon at the UKs largest independent neurosciences trust, I am part of a specialist clinic and routinely operate on patients with this condition. I have been always struck by the problems they have, and the symptoms they continue to have despite, what appears to be, successful treatment. I hope you will help support this US charity in their work to help understand the problem and improve treatment for the future. Many thanks