My Grandson Mikaere has NKH, so I'm partaking in the NKH Chicken Nugget Challenge! 

I will eat 50 chicken nuggets in the name of NKH, and am looking to get each nugget sponsored by £2, for a total of £100.  Please sponsor a nugget or five! 

I can comfortably eat 23, so that's a positive start. See Kai's instagram highlights for proof: https://www.instagram.com/stories/highlights/17847159874843642/

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We're raising money for NKH Research. Nonketotic Hyperglycinemea (NKH) is a rare and terminal metabolic disorder that affects children. It means they can't process glycine, which is a neurotransmitter. Toxic levels of glycine cause the neurones to overfire and die, causing brain damage.

This is shown as seizures, severe global developmental delay (delays in physical, intellectual and social development), low tone, causes children to be severely disabled.

Joseph's Goal supports Prof Nick Greene at UCL in London, who is the closest to a clinical trial for gene replacement therapy - a treatment which would radically improve the quality of life of kids with NKH.

Because NKH is so rare and is funded by families, every single penny helps. Every single pound raised has a tangible effect on what can be done. The funds raised by families last year sped up research by 18 months - this is significant, when 80% of children with NKH don't see their first birthday.