Thank you for reading my story - I'm signed up to complete the 2022 RideLondon-Essex 100 (miles) on Sunday 29th May for PSPA because their research and support is vitally important!

In 2021 my father-in-law was unfortunately diagnosed with Progressive Supranuclear Palsy after initially being misdiagnosed on several occasions. There are no simple tests or brain scans for PSP. In its early stages, symptoms can resemble those of other neurological conditions such as Parkinson’s or Alzheimer's.

So what is PSP:

• Progressive – it steadily worsens over time
• Supranuclear – it damages the nuclei that control eye movements.
• Palsy – it causes weakness.

PSP is the progressive death of nerve cells in the brain, leading to dizziness & difficulty with balance, movement, vision, speech and swallowing.

Like many other chronic conditions, there is no cure for PSP. However, many of the symptoms can be managed to help people achieve the best possible quality of life.

PSPA is the only UK charity dedicated to providing support for those living with PSP. The team is simply fantastic and have already become an integral part of our family, providing unmeasurable support, guidance and friendship as we navigate the challenges ahead.

Through this page, I hope to raise awareness of PSP and raise funds for this rare and untreatable condition. There are believed to be around 4,000 people living with PSP in the UK at any one time.

I have paid all event costs, so anything you donate will go 100% to the charity - thank you and wish me luck!

Anil