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95 %
£952.72
raised of £1,000 target
by 35 supporters
Anna Phillips avatar
Anna Phillips

Anna's Ironman Vichy 2019

I Am Training For My 3rd Ironman In Vichy. for Primary Ciliary Dyskinesia (Pcd) Family Support Group because To Raise Awareness Of PCD

95 %
£952.72
raised of £1,000 target
by 35 supporters
  • Event: Ironman Copenhagen, 20 Aug 2017

Primary Ciliary Dyskinesia (Pcd) Family Support Group

We help and inform PCD patients/families to live happy and healthier lives

Charity Registration No. 1049931

Story

Thanks for taking the time to visit my JustGiving page. I cannot train for another event without giving it an extra purpose. If you feel you would like to give me that extra motivation please feel free to show your support.

PCD is a rare genetic condition which primarily affects the lungs.  People affected have faulty cilia which causes problems that are similar to Cystic Fibrosis. My friend's children have spent a lot of time in hospital receiving iv antibiotics and intensive physiotherapy. Every day of their lives they have to have physiotherapy to clear the secretions on their lungs.

Money you donate will be used by this small charity to help people living with the condition, improve treatment, help research and raise more awareness within the medical community.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Photos

4
  • Copenhagen 2016
  • +2

Supporters

35