As some of you are aware I was diagnosed with Achalasia Disorder in 2016. From then my life has completely changed and I’m now the Director of Fundraising for Achalasia Awareness Organization. 

Since being diagnosed I’ve realised not enough people know what Achalasia is, yet it impacts the life of an Achalasia sufferer so much. 

Achalasia is a rare,incurable,progressive auto-immune disease with only palliative treatment. 

The muscles in the esophagus fail to relax and contract which makes swallowing foods and liquids extremely painful and difficult. 

Achalasia Disorder is what I call an ‘Invisible Illness’.

I’m hoping this gives anyone who is battling an invisible illness the opportunity to have a voice and to prove that you don’t have to visually see pain to feel it. 

Please watch and share this video. 

https://youtu.be/fJ8Ggx2KEvs

We at AAO have worked so hard on this years campaign and we can’t wait to see your ideas! Here’s a few of my ideas from my #PaintMyPain shoot with the incredibly talented Hedshotz Photography. 

“ Not every disability is visible, but that doesn’t mean the pain isn’t real.” 

Now is your chance to have a voice and #PaintYourPain to #HelpAchalasiaDyeOut. 

Be creative! Use some temporary Achalasia blue hair dye or paint your pain blue like me! We can’t wait to see your ideas. Don’t forget to tag Achalasia Awareness Organization on all social media platforms and follow me on Instagram “annierosesachalasiajourney” 

Together we can #HelpAchalasiaDyeOut and one day...find a cure 💙

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