Myotonic dystrophy is one of the most variable and complicated disorders known. Although often viewed as a muscle disease, individuals affected may have skeletal muscle problems, heart function abnormalities, breathing difficulties, cataracts, issues with speech and swallowing cognitive impairment, excessive daytime sleepiness, or diabetic symptoms. Any single individual is unlikely to have all or even most of these symptoms.

The Myotonic Dystrophy Foundation is the world’s only patient advocacy organisation focussed on Myotonic Dystrophy  serving individuals and families around the world.

I know their work really well and am a huge admirer of their rigour, passion and commitment. Another key reason for my support is that they have fully audited accounts demonstrating that 87 pence out of every £ donated goes straight to funding research and providing resources to families living with Myotonic Dystrophy. They have been pioneers supporting academic and drug company research. It is in this crucial research stage that charity plays a vital role with 63% of funds raised going into pioneer research to understand the cause of the disease , prevention and development of new diagnostics and treatments

About 1 in 8000 people are affected around the world ( 9,500 people in the UK have a form of myotonic dystrophy )and it is these and more like all over the world that I am riding for. 

My deepest thanks  for your kindness and generosity.

All my very best.

Love

Anthony/Tone/Uncle T