The BDFA

The BDFA

Fundraising for Batten Disease Family Association
£8,455
raised of £10,000 target
by 112 supporters
Donations cannot currently be made to this page
Team: Arch2Arc
Batten Disease Family Association

Verified by JustGiving

RCN 1084908, SC047408
We fund research and support families to find a cure to Batten disease

Story

The Batten Disease Family Association (BDFA) helps support families who have been affected by Batten’s disease. This charity means a great deal to me as one of my best mates, George O’Connor, and his family are affected by it. I have known him since we started prep school together and growing up with him I have seen how his life, and that of his family, has been affected by Batten’s disease.

Having known him and his family for so long I felt it was my turn to step in and do my bit. George’s dad Mike is on a mission to reach the landmark of raising a total of £1 million for the BDFA over the course of the last ten years.

The ultimate aim is to try and help Mike reach this target to provide; family support, research, educational assistance, legal support, fundraising guidance, and most importantly someone to be there at diagnosis, among many more other positive things. 

He is just £128,000 from reaching this astounding achievement. Our aim in this challenge is to make a significant impact into Mike’s efforts and push him ever closer to the great landmark.

This means a lot to me, as George is one of my oldest friends and I feel like we can really make a difference for George and his incredible family. 

Thank you in advance for your kind donations.

About the charity

Batten Disease Family Association

Verified by JustGiving

RCN 1084908, SC047408
Batten disease is a group of rare, progressive neurodegenerative, genetic metabolic diseases that occur in children & adults worldwide. The BDFA's Vision is to be the central point of excellence in the UK for supporting affected families funding research into a potential cure.

Donation summary

Total raised
£8,454.40
+ £1,220.00 Gift Aid
Online donations
£6,198.50
Offline donations
£2,255.90

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