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Samantha Hurst avatar
Samantha Hurst

Archie's Army's finding a cure for Duchenne

Raising money for Muscular Dystrophy UK for Muscular Dystrophy UK because Our children need a cure for Duchenne

40 %
£1,622.86
raised of £4,000 target
by 27 supporters
Donate

Muscular Dystrophy UK

We fund research into muscle-wasting to improve the lives of everyone affected.

Charity Registration No. 205395 (England and Wales) - SC039445 (Scotland)

Story

On the 21/10/13 Archie Armsden was brought into our lives.  It was love at first sight, he was prefect. Like every parent, we worried throughout pregnancy, but after a difficult labour and against all odds Archie was a strong and healthy little boy. 

In August 2015 our lives changed forever.  Archie had been considered a late walker and was referred to the hospital for an assessment.  The consultant and physio were both happy with Archie's progress since taking his first steps but carried out a blood test to rule out an iron deficiency. 

Archie never complained during the blood test and we still have his certificate pinned to the fridge for being so brave. The next night we received a phone call telling us to take Archie to the hospital urgently because the blood test results indicated a very serious condition. We learnt that the CK levels in the blood were at 37,000 a level which would normally be well under 2000. After 3 days at the hospital, we as parents heard the worst news possible. On the 25th August our beautiful Archie was diagnosed with Duchenne at the age of one.

Duchenne Muscular Dystrophy is a rare muscle wasting condition mainly affecting boys.  It means that Archie cannot produce the protein dystrophin and will lose the ability to use the muscles in his body. Symptoms can start from between the age of 2 and 3 and causes premature death. 

Our son is now 2 and overtime will lose his ability to walk, he will no longer be able to use his arms to carry out everyday tasks and due to weak bones, will develop painful skeletal deformities. All of the muscles in the body are affected including the heart and lungs and the damage will eventually be fatal. 

There is currently no cure for Duchenne and  children as young as 5 have lost their battle to this condition.   

The last 5 months have been a blur, we have cried more than we never thought possible and felt heartache like never before, but we have now dried our tears and picked ourselves up. We know that we have to fight for our brave little boy.  

Archie has never complained throughout the numerous blood tests, scans, ECG's or meetings with doctors at the hospitals and has remained the happiest 2 year old we all know and love. 

Archie's Army want to raise as much as possible for Muscular Dystrophy UK who supports high quality research to find effective treatments and cures, in the hope that a cure is found because losing our son is not an option.

Donating to this charity will really make a difference to our lives and we thank you in advance. 

Samantha, Wayne and Archie XxX 



Thanks for taking the time to visit my JustGiving page.Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.

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Supporters

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