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Vicky Flintoft avatar
Vicky Flintoft

Archie's Army DBA

Fundraising for DBA UK on behalf of Archie for Diamond Blackfan Anaemia Support Group Uk because Archie suffers from DBA and adrenal insufficiency

103 %
£20,778
raised of £20,000 target
by 208 supporters
Donate
  • Team members: Family and friends of Archie
  • Event: SimplyHealth Great North Run 2018, 09 Sep 2018

Diamond Blackfan Anaemia Support Group Uk

We fund research and host patient events to offer hope and support to those with DBA

Charity Registration No. 1083179

Story

Archie suffers from a rare life threatening genetic condition,  Diamond Blackfan Anaemia (DBA) where his bone marrow fails to produce red blood cells. This means that Archie relies on blood transfusions every 3 weeks just to stay alive.

A result of having blood transfusions means a build up of iron in his body, if not treated this would mean that the iron would start to attack his organs starting with the liver and heart and ultimately would be fatal. To control this Archie has to have a needle inserted in to his leg 5 nights a week which is attached to a pump that pumps medication in to him while he sleeps. This break the iron down but it hurts 😢

In addition  to this Archie has developed Adrenal Insufficiency as a result of steroid therapy he received. This is a secondary life threatening condition and means that Archie is also dependent on steroids just to stay alive.

DBA UK are a huge support to the DBA community and they provide funding for research into better treatment paths for people effected by this rare and little known disease.......who knows, maybe one day even a cure!

Please, please if you can support Archie's Army in any way, please get in touch through Archie's Army on Facebook or message Vicky Flintoft (Archie's mum) direct. Every penny counts.....help us keep our children healthy and happy xxx

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