Story
Hi guys and girls,
I'm doing a 100ft Abseil at Discovery Park, Sandwich in aid of Dravet Syndrome UK.
70% of monies raised will be going to Dravet Syndrome UK and 30% will be going to Kent and Medway Charity team for staging this event and for its children's Road safety work :-)
Dravet syndrome
is a rare genetic epileptic encephalopathy (dysfunction of the brain). It begins in the first year of life in an otherwise healthy infant. Prior to 1989, this
syndrome
was known as epilepsy with polymorphic seizures, polymorphic epilepsy in infancy (PMEI) or severe myoclonic epilepsy in infancy (SMEI).
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THANKS YOU SO MUCH FOR TAKING TIME TO READ :-)