Ashley Smith

Ash & Ben for Kray & CMV Action

Fundraising for CMV Action
£1,050
raised of £700 target
by 50 supporters
Donations cannot currently be made to this page
Event: Great North Run 2022
Participants: Ben Tidmarsh
CMV Action

Verified by JustGiving

RCN 1171773
We raise funds and awareness to support families affected by CMV.

Story

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CMV or Cytomegalovirus is a common virus that can infect people of all ages. Most healthy adults and children who become infected will have no signs or symptoms and no long term effects from CMV. However, CMV can pose serious problems to unborn babies if a woman catches it during pregnancy. In fact congenital CMV (when the infection is passed from mother to baby across the placenta) is one of the most major causes of childhood disability.

At a routine scan during my wife’s second pregnancy the doctors came across some abnormalities. My wife underwent tests and not long after we received the devastating news that she can contracted Congenital CMV. Something we had never heard of.

Two months of fear and uncertainty passed untill the 15th of February 2017 when our son, Kray-James Smith was born. 

Fast forward to today and our beautiful boy is 5, doing well at Milestones school, smiling and laughing where ever he goes with who ever he meets.

These are the problems that Kray fights everyday, all caused by or stemmed from CMV.

Congenital CMV

Microcephaly

Epilepsy

Cerebral palsy 

Development delay

Non mobile /Non verbal 

Peg feed

Type 1 diabetes

Subluxated hips

Liver fibrosis

We are not runners by a long shot but Krays God father Ben and I will be putting in everything to get the GNR done in a respectable time. We will be running with Kray and all the things he’s gone through in our minds and also all the other families and children living with Major disabilities.

Please if you could find it in your hearts to donate and /or share this page it would mean the world to us. No donation is too small.

Thank you 


About the charity

CMV Action

Verified by JustGiving

RCN 1171773
CMV Action is a UK organisation of parents and volunteers, who have come together to support families, to raise public awareness of congenital CMV, and campaign for better prevention measures within our health service. We offer advice, support and friendship to anyone affected by congenital CMV, advocating for families and working with a number of medical professionals who have an interest in this field.

Donation summary

Total raised
£1,050.00
Online donations
£1,050.00
Offline donations
£0.00

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