Orlagh 's August 100k

Orlagh Reynolds is raising money for Irish Motor Neurone Disease Association

Team: Black and White Fight MND

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August 100k · 1 August 2022

The Irish Motor Neurone Disease Association (IMNDA) is the only organisation of its kind in the country providing specialised services to families affected by this terminal condition. The Association cannot slow the progression of MND or change the outcome but we can alleviate the feelings of isolation and frustration. We offer consistent support to approximately 400 families across Ireland who otherwise would have nowhere else to turn. Everybody with MND has different needs at different stages of their journey and we are here to help and guide them every step of the way. The services provided by the IMNDA are immediate and free of charge for everyone registered with the Association. Key services include: • Access to 4 outreach nurses directly employed by the IMNDA and funded entirely by donations. • Access to a home care grant. • Access to specialised equipment on loan (e.g. wheelchairs, hoists, communication aids etc). • Access to funding towards counselling sessions for the person with MND and family members. Your support is absolutely vital. More than 86% of our income comes from fundraising and donations.

Story

My name is Orlagh Reynolds and I am a Director at Hays Recruitment, wife to Fraser and mother to Oonagh. 

On the 24th of May my world fell apart as I sat holding my husband's hand while a neurologist told us that Fraser had MND (Motor Neurone Disease) and as there is no cure, his life expectancy is now between 2 and 5 years!

Motor Neurone Disease is an incurable condition that causes the progressive degeneration of the nerve cells that control the muscles.

I always thought these things happened to other people, but now this nightmare has knocked on our door.

So why am I posting this today? Well in a very short period of time I have seen a drastic decline in my husband’s mobility. Going for a walk is no longer a thing we can do as a family, now when my daughter holds his hand it serves two purposes, one to tell her daddy she loves him and two to give him support!

I am now painfully aware of how often we take for granted the ability to go for a walk, a run or take any kind of exercise. I can't sit idly by and do nothing, I need to bring some positivity to our situation and that is where this challenge comes from.

I want to run a 100km over the month of August, a physical battle I know I will struggle with but nothing compared to what Fraser is going through. 

Please join me in taking this challenge to remind each of us not to take our physical health for granted and help raise €18,000 for the IMNDA.

IMNDA have given us so much support and without them this horrible journey would have been very lonely. They are involved with funding research, supporting families with counselling, and all the logistical things that you need and don’t even realise you may need.

How can you help? Take part in this challenge and help raise money to fund the fight to find a cure for MND.

So please donate or message me to join this challenge.

Donation summary

Total
€20,857.70
Online
€20,857.70
Offline
€0.00

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