Thanks for taking the time to visit my JustGiving page.
We are running this year's Colour Run to raise awareness for Duchenne Muscular Dystrophy.
Shiv is our cheeky 5 year old, fun-loving, car enthusiast cousin with the most infectious smile. In April 2014, he was diagnosed with an extremely rare condition, Duchenne Muscular Dystrophy.
Duchenne is a neuromuscular condition and means Shiv is getting weaker by the day. In his early teens he will lose the ability walk, by his late teens he will start to suffer respiratory complications and by early twenties he will die from heart failure. Currently there is no cure.
DMD mainly affects boys. About 100 boys with Duchenne are born in the United Kingdom each year. There are currently 2,500 people living with Duchenne Muscular Dystrophy in the UK, of which less than 1% are female.
We want to help raise awareness of Duchenne Muscular Dystrophy and raise as much money to aid research into finding ways to cure this disease.
For more information, please visit www.smilewithshiv.org or www.musculardystrophyuk.org
Please help us to #smilewithshiv and #fightduchenne
Avisha, Geeta and Avni
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