Joshua's Mount Snowdon Trek

Avril Taylor is raising money for Trisomy 9 Mosaic Trust
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Joshua's Mount Snowdon Trek · 28 March 2015

Trisomy 9 Mosaic (T9M) is a very rare chromosome disorder. In the UK there are approximately 12 children/adults with this condition and approximately 130 globally. The charity has been set up to offer emotional and practical support to families affected by T9M or other T9 related conditions.

Story

On March 28th 2015,  I will be trekking up and down the tallest mountain in the Wales (Snowdon) to raise money and more importantly awareness of a charity called the T9M Trust.  I like you had never heard of the charity until very recently but then close friends were told that their son has a rare genetic condition

called Trisomy 9 Mosaicism.  This condition is so rare that as of July 2014 there were only 120 known cases globally (this equates to approximately 1 in 100,000,000 or a different way is that we could win the UK National lottery 5 to 6 times).  What this condition means long term is vague at best (as there has been no research conducted).

 


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£180.00
+ £45.00 Gift Aid
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£180.00
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£0.00

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