Hello and thank you for visiting our fundraising page for Action Duchenne!

Below is some information as to why we are partaking in this fundraising event:

Fraser is a cute and handsome little boy who goes to school with our children. In 2014, when he was just a baby, he was diagnosed with Duchenne muscular dystrophy, a life-limiting condition causing muscles to weaken and waste away over time, resulting in paralysis, and reduces life expectancy to an average of just 30 years. It has no cure and the only effective treatment helps just 13% of cases, sadly Fraser is not one of these. He uses a wheelchair full time yet he is the happiest little boy we know.

Duchenne muscular dystrophy affects about 2,500 people in the UK, with the vast majority being male. This is approximately 100 births a year – often occurring spontaneously, meaning it could happen to your son, your nephew, your brother or your cousin – just like it happened to Fraser. We are very aware it could have happened to our own children..

Action Duchenne is a small UK charity which receives no government funding – every penny they raise comes from families who tirelessly take part in fun runs, bake sales, sky dives, raffles and any other crazy events that might help to make a difference! The charity has one clear vision: ‘to have a world where lives are no longer limited by Duchenne muscular dystrophy’ and we want to help them in their mission. They fund research to develop effective treatments for all, build a community for those affected and campaign to improve the lives of those living with Duchenne.

Thank you for reading and supporting us, it means so much to us and to Fraser’s Mummy and Daddy.

Lauren, Sarah & Joanne 😊