Thank you for visiting my Awesome Abseil 2019 fundraising page!
On the 8th June 2019 I will be abseiling 418 feet down the tallest permanent abseil tower in the world!
I am doing this to raise money for Action Duchenne and raise awareness of a condition called Duchenne Muscular Dystrophy (DMD). I didn't know about this condition until Sophia started school with a little boy called Fraser.
Fraser is a very funny and happy little boy who goes to school with Sophia. In 2014, when he was just a baby, he was diagnosed with Duchenne Muscular Dystrophy, a fatal life-limiting condition causing muscles to weaken and waste away over time, resulting in paralysis, and reduces life expectancy to an average of just 30 years. It has no cure and the only effective treatment helps just 13% of cases, sadly Fraser is not one of these. He uses a wheelchair full time but that doesn't stop him playing Tag with Sophia, Sebbie and his sister April after school!
Duchenne muscular dystrophy affects about 2,500 people in the UK, with the vast majority being male. This is approximately 100 births a year – often occurring spontaneously, meaning it could happen to your son, your nephew, your brother or your cousin – just like it happened to Fraser. I am very aware it could have happened to Seb.
Action Duchenne is a small UK charity which receives no government funding – every penny they raise comes from families who tirelessly take part in fun runs, bake sales, sky dives, raffles and any other crazy events that might help to make a difference! The charity has one clear vision: ‘to have a world where lives are no longer limited by Duchenne muscular dystrophy' and I want to help them in their mission. They fund research to develop effective treatments for all, build a community for those affected and campaign to improve the lives of those living with Duchenne.
Thank you for reading and supporting me, it means so much to myself and to Fraser’s Mummy and Daddy.
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