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Sam Hulance

Bazaarvoice Runs

The BV team is running in Europe for Joseph's Goal because we want to raise funds for NKH research

£2,374.63
raised by 66 supporters
Donate
  • Event: Bazaarvoice Runs

Joseph's Goal

Joseph Michael Kendrick is 10 years old and has Non-Ketotic Hyperglycinemia, a rare genetic disorder that affects one in 60,000 new-borns. The condition is so serious that less than 500 people in the world are living with it. Joseph’s Goal has been set up to raise funds and awareness into NKH.

Charity Registration No. 1151548

Story

This September, the Bazaarvoice team will be running in Paris and Amsterdam, and London to help us raise money for Joseph's Goal and NKH research, so please donate if you're able! 

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We’re raising funds for NKH research. There are so few NKH research projects every pound we raise has a tangible effect on the research that can be done and every pound we raise will have a direct effect on Mikaere's future. #dontStopBelieving

We support Joseph’s Goal as they're UK’s only NKH charity and their donations help fund research by Professor Nick Greene at UCL/Great Ormond St Hospital.

He is developing gene therapy options to provide longer-term treatment and so far, his research has had promising results and in the next stage of research Mikaere's DNA may be used as part of a case study. 

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From Sam, Elly and Mikaere:

Thank you to everyone for the love and support we've received since our baby boy was born. Thank you to everyone who has already donated and helped us raise money for Joseph's Goal and NKH Research. Thank you to Bazaarvoice for getting fully behind our cause. Thank you to everyone for the messages and emails - we can't imagine moving forward without the support we have. 

You can follow our story at www.teammikaere.com and on Instagram: www.instagram.com/teammikaere/

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Supporters

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