It’s time to put our money where our mouths are. Who remembers “Bean-Gate” from last summer?
For our new members and the uninitiated, our lovely Lauren Roberts (SWAN UK co-ordinator) lamented the fact that as a child her Mum had never let her sit in a bath of beans a la 80’s style popular fund-raising events.
Well far be it from us SWAN UK members to deprive someone of their dreams and ambitions and it just so happens that we have been able to arrange for Lauren to have a bean dunk!. This is scheduled to take place at the Undiagnosed Children’s Day Event on 23rd April 2016 in Yorkshire. (For more information about the event please email email@example.com).
However, there is a catch. Lauren has only agreed to this - & photographic evidence of the process - if we can raise a minimum of £4000 to support SWAN UK and it’s fantastic work. So it’s time to get clicking and pledging on the link below. C’mon people let’s make this happen.
Thank you for your support :) Lisa Beaton, SWAN UK Parent Rep for North Yorkshire.
SWAN UK (syndromes without a name) is part of the charity Genetic Alliance UK. It is the only specialist support available in the UK for famliies of children with undiagnosed genetic conditions. 6000 children are born each year in the UK with a syndrome without a name.
SWAN UK's Big Ambition is that every one of these families will get the support they need, when they need it, regardless of whether their child is diagnosed.
SWAN UK currently has around 2000 member with more joining every day - but we know there are so many more who need support. Your donation will help us achieve our target of doubling our membership by 2017.