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Over the Summer holidays what seemed to be a passing comment by our 14 year old son led to something much more than that.. ' Mum, sometimes I get a little dizzy and for a few seconds I get tunnel vision'
Something in my gut just didn't seem right so the following day we visited the GP. His blood test, eye test and ECG all came back as normal but our GP could see that I felt uneasy and referred him to a Pediatric Cardiologist for further tests.
At first it was thought that his blood pressure from laying and sitting to standing wasn't raising quick enough and this is what was causing the symptoms. Apparently it is quite common in children and they often grow out of it. His consultant, Dr Rahman who also works at Southend Hospital, suggested that an Echo Heart Scan and 24hr ECG test should be done just to be sure that nothing else was going on. No one expected anything to show up in the tests but unfortunately it did.
When we went back to see Dr Rahman for our sons results we were informed that a issue had been detected. Before we knew it we were at the Royal Brompton Hospital in London where our son undertook a further ECG and a fitness test to see how his heart performed under pressure. This test was critical to ascertain why our son is having many more heatbeats than normal. He is a fit 14 year old, who generally eats well and drinks lots of water so not in a million years did we think anything was wrong.
As to date we know that he will still need some further tests. His additional heartbeats are deemed to high to be left and therefore we have been told that surgery is likely. We are awaiting news for what happens next.
It has been an utter whirlwind of worry, sleepless nights whilst continuing with our everyday lives. Our son on the other hand has taken it all in his stride, for which we are very grateful and immensely proud of him.
The care he has received has been second to none and we want to give something back to help other children, who visit Southend Hospital, to hopefully have access to the best Pediatric Echo Heart Scan machine they can. This machine has been on the departments wishlist for the last few years and various fundraising by others has taken place to try and raise the money needed to buy the machine. There isn't enough money in the NHS funding pot to give every department exactly what they need unfortunately, so we would be VERY GRATEFUL if you could kindly spare any amount you can, however big or small to help. This machine really would add so much to the cardiology care of children.
SO I have signed up for a virtual fitness challenge where I have to complete a WHOOPING 1083.8 miles by walking, running and cycling the equivalent distance from Lands End to John O'Groats!!
I am due to start the challenge on the 1st October and I hope to complete the challenge within 6 months. That may seem like loads of time but when you take into account I probably did that mileage in the last 12 months alone then the challenge becomes a little clearer!
I shall keep you updated with where I am on the map, the high and lows and everything in between. It's a massive task for me so I really hope you will join me on the journey and help to raise those all important funds to get the Pediatric Echo Machine.
Together we can make a difference and help the children's beating hearts.
Thank you from the bottom of our hearts.
And to our Son.... we love you very much, we stand by your side every step of the way.
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