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Andrew Flood avatar
Andrew Flood

Becca's Donating 20'' of hair

Donating my hair to the little princess trust for Amy and Friends because My daughter Sophia has Cockayne Syndrome

784 %
£1,568.60
raised of £200 target
by 102 supporters
Donate

Amy and Friends

Amy & Friends provide support for the health and well being of sufferers of Cockayne Syndrome and their families and carers. We provide an annual members retreat where families spend time in each other's company and meet leading doctors and researchers. We also provide a family support worker.

Charity Registration No. 1119746

Story

I'm raising money for Amy and Friends Cockayne Syndrome Support Charity by cutting and donating 20'' of my hair to the Little Princess Trust, a charity that make children wigs who have lost their hair through various reasons. 

Cockayne Syndrome is a rare genetic, premature aging degenerative condition, with currently no known cure it leaves children who suffer with an average life expectancy of just 8.4yrs 

My daughter Sophia was diagnosed with Cockayne Syndrome January 2015. 

Amy and Friends provide support to CS families, supply much needed equipment and help to fund vital research. They also hold and fund an annual medical conference where all the families are invited to attend so they can spend time together and can speak to Doctors and professionals about CS and all the progress with research. 

Thankyou for your continued support 

Love Becca 💜 

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Supporters

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