I'm raising money for Amy and Friends Cockayne Syndrome Support Charity by cutting and donating 20'' of my hair to the Little Princess Trust, a charity that make children wigs who have lost their hair through various reasons.
Cockayne Syndrome is a rare genetic, premature aging degenerative condition, with currently no known cure it leaves children who suffer with an average life expectancy of just 8.4yrs
My daughter Sophia was diagnosed with Cockayne Syndrome January 2015.
Amy and Friends provide support to CS families, supply much needed equipment and help to fund vital research. They also hold and fund an annual medical conference where all the families are invited to attend so they can spend time together and can speak to Doctors and professionals about CS and all the progress with research.
Thankyou for your continued support
Love Becca 💜
