Claire and I first met when Claire's son Jacob was first admitted to the ward with seizures. He was diagnosed with mitochondrial disease and sadly died at 16 months old in 2012.  A life that was far too short but has had a massive impact on all those that met him. Jacob has been the inspiration behind Claire's amazing fundraising work and now it's my turn to join in the fun! 

The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16! There is no cure for this disease which is for many, debilitating and life limiting.Please stand with us and fight Mitochondrial Disease and fight for hope.

Please donate if you can and help us find a cure so that families living with mitochondrial disease can have hope for a cure.