Our motivation for doing this is simple. We are in awe of a wonderful little boy called Toby (AKA Pup).

Toby suffers from a rare condition called Mitochondrial Disease which currently has no cure. Having seen Pup grow up from being given hours, days, weeks, months and years to live has been extraordinary & heartbreaking at the same time. He is a real life hero and together with his tenacious and incredible family he is defying the odds and bemusing doctors daily.

This though, albeit it inspiring to see is not enough, there is a couple of words that you cannot get away from with regards to Mitochondrial Disease- it is ‘life-limiting’ 

Raising money and awareness for The Lily Foundation could help to eradicate these words in reference to Mito by helping them find a cure. 

Pup, Nieve, Katie & Matt fight everyday against Mito, their strength as a family is so incredibly inspiring. We want to do whatever we can to stand by them and hopefully help raise awareness and money for The Lily Foundation.

We are amateur runners with only one of us (Olly) ever doing a run of this length (this only happened once, a long time ago and I haven’t heard the end of it!) but if Pup can do 15km in his walking frame for the Lily Foundation over lockdown, we can do this! 

Donating just a small amount will make a huge difference, this is a relatively unknown disease but one of the most common and it currently has no cure and very awareness.

The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16! There is no cure for this disease which is for many, debilitating and life limiting.Please stand with us and fight Mitochondrial Disease and fight for hope.

Thank you for your support! 

Davies & Foz