we are doing a 8 mile walk in memory of indi faith to raise as much as we can for the neonatal intensive care unit where indi faith spent 11 weeks of her life fighting a very rare condition of megasystic hydrophronasis intestinal syndrome indi faith was also born 6 and half weeks early which added more complications she was extremely poorly the first week she was on a ventilator and we was told indi faith may not make it through there was nothing we could do other than sit by her incubator hoping and praying she would pull through after a long 5 days she came off her ventilator onto high oxygen which was a massive step all the doctors were amazed by her progress i always knew she would fight as much as she could. at 11 days old indi finally got to be held by her mummy and daddy, A few weeks went by and indi faith got moved from intensive care into high care where they also put her on low oxygen and slowly came off it we were all so proud of how far she had come already she had 3 blood transfusions and 2 operations but with her first operation she become very poorly again as she ddeveloped an infection stopped breathing and was back on a ventilator we knew there was going to be good and bad days but indi faith was always a happy baby hardly cried but when she did it wasnt for long a few days later all the doctors sat us down for a meeting they said indi had got through so much already she was about 8 weeks by now it was bad news they said there was nothing more they could do for her anymore they also got a second opinion by great ormond street who gave the same answer they said we should take indi home and create some nice memories with her after a week we finally made the decision to bring her home it took 2 weeks to organise everything as we needed equipment at home. we finally took indi faith home on friday 18th january 2013 the day of heavy snow Indi had alot of visitors for the next 4 days while the snow cleared up. we also had a family photoshoot too which was lovely, we knew by tuesday 29th january it was time for us to go to chestnut tree house a hospice for terminally sick children we went the next day and on the thursday Shona and Sam got to take indi faith swimming in a specially heated pool which she loved like all of her baths too. indi faith sadly passed away on friday 1st febuary 2013 experienxing all what we had made me realise there are loads of other babies in need of help and that is why we are doing this. thank you to anyone that has taken the time to read my stoey and donated it means so much to me my family and friends anything helps. thank you