Ben's Stickler page

Ben Greenhalgh is raising money for Stickler Syndrome UK
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2013 Triathlon season · 29 October 2012

Stickler Syndrome UK aims to raise awareness of Stickler syndrome amongst the medical profession; promote the value of early diagnosis and help preserve vision, hearing and mobility (particularly the prevention of sight loss in children and adults).

Story

Stickler Syndrome is a heriditary disease affecting 1 in 7500 people. It is a condition affecting collagen and causes a range of symptoms including cleft palate, a strong predisposition to detached retinas, heart and hearing problems.

The condition is very much under diagnosed, even with children born with cleft palates and because of this retinal detachments are unexpected and often lead to blindness in the affected eye.

I am supporting this charity because several members of my family live with Stickler and I hope to build on my Dad's succesful fund raising campaign of last year. 

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Donation summary

Total
£717.00
+ £157.50 Gift Aid
Online
£687.00
Offline
£30.00

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