Story
Stickler Syndrome is a heriditary disease affecting 1 in 7500 people. It is a condition affecting collagen and causes a range of symptoms including cleft palate, a strong predisposition to detached retinas, heart and hearing problems.
The condition is very much under diagnosed, even with children born with cleft palates and because of this retinal detachments are unexpected and often lead to blindness in the affected eye.
I am supporting this charity because several members of my family live with Stickler and I hope to build on my Dad's succesful fund raising campaign of last year.