Hello & welcome back for Brighton Marathon #2!
Many of you may know my story by now, so please forgive me while I explain to those who may not.
My name is Bethan and I have Cerebral Palsy, CP for short. I like to be active and make the best of the ability before me. There are many things I can do, some things I struggle to but every day I try to live life how I was taught to by an inspiration lady that as luck has it also happens to be my Mom, Amanda.
Amanda was born healthy and grew up into a clever young lady. She met Dad whilst working as a barmaid and they married in a very snowy January. A few years after marrying, Mom was diagnosed with Multiple Schlerosis (MS) but this didn't stop her and Dad going on to have my Brother & myself (the cool one)!
Growing up being disabled with a disabled Mother wasn't always easy, but it worked - all seemed to run smoothly... until the summer of 2011
Falls started becoming regular at first. Then Mom's speech became unclear. You could almost watch her hands, each day becoming lifeless... soon we were left with a beautiful intelligent mind locked in a failing body. In 2012, we as a family were told that Amanda had Motor Neurone Disease (MND). MND is a life limiting, neurological disease that happens when motor neurone cells stop working. you can't move, talk, eat and eventually breath.
In March 2016, Mom's time with us ended. She sure is missed every single day! I understand that there is nothing on earth that can bring Mom back. So I'm raising money, so that one day perhaps noonne has to face this cruel disease.
Please help, however you can.
Love Bethan, Amanda and family