Story
Thanks for taking the time to visit my JustGiving page <3
Every working day 123 people are diagnosed with epilepsy, that's one person every four minutes. Each day 123 people are faced with an uncertain future.... this hit home for me and my family at the start of 2011 when my 4 year old nephew Callum took his first epileptic seizure out of the blue!
He was a happy, healthly, lively little soul he loved power rangers, playing in the garden, going to nursery, going swimming and climbing everything! Just a normal 4 year old boy. His first sezuire lead on to mutliple sezuires and unfortunately not just one type of sezuire we now know Callum has at least three types of epilepsy... over the following weeks he was having various types of seizures daily, some lasting upto 9 minutes, some days 10, 50, 100 seizures a day his mum Lisa & dad Ian (my brother) having to be strong and be there and watch helplessly until they ended only for another to start :( the first few months were horrific for them both and they have strength and courage i could only wish for under such circumstances.
They never stopped pushing for answers from doctors and specialists looking for any help that could make Callums llife easier, for over a year his future was very uncertain... month on month he seemed to be getting worse and Lisa was almost a permanent feature in either Monklands, Wishaw or Yorkhill hospital! Callum's medication changed monthly each time we all held our breaths hoping this time it'd work and his weak little body which was now looking exhausted would get that break we all prayed for, his mobility & cognitive functions were now also drastically effected and he struggled somedays to hold a conversation or walk. It seemed to go on for ever and each hospital visit would throw another possible problem in the mix, he had to wear a protective helmet everyday to take some of the impact from every blow to the head when he would have a drop attack ( these are scary as theres no warning they just drop little a stone with no function) his little face was usually black and blue when he had these types of seizures.
Heres the good part!
Callum's medication was changed at the start of this year and at the same time he was put onto ketogenic diet (Lisa & Ian weigh and measure everything callum eats, they do an amazing job with this) and given calgen supplements to take along side his meals. So far (fingers crossed) he has been seizure free for over 4 months!
Charities like epilepsy action are extremely important as they are the support families like mine need when someone they care about develops this horrible condition. Please help me give just a little back to help others in the same situation we found ourselves in without warning, it could happen to anyone, anytime.
So please dig deep and donate now <3
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