My name is Uuganaa and our son Billy was born in November 2009. He was diagnosed with Down's syndrome and he died in our arms in February 2010. As parents we want to help other families and be more involved, but the truth is when I see children and adults with Down's syndrome I feel teary and miss our baby. It's still very close to our heart.
This challenge gives us the opportunity to help children and adults with Down's syndrome by doing something in memory of our much missed baby boy Billy.
On the 6th to the 8th September I'm trying to raise funds for Down’s syndrome Scotland by completing the ‘Big Small Isles Challenge’.
The Small Isles consist of the islands of Rum, Eigg, Muck and Canna. On this charity challenge event, I must visit all four of the Small Isles and climb to the highest point on each one. The itinerary provides the physical challenge of climbing 4 mountains over 2 days (ranging from 137m - 812m high), with the excitement of high speed RIB transfers between the islands. (It will be a challenge - I get sea sickness and I can't swim!)
Down’s Syndrome Scotland provides services, support and information to people with Down’s syndrome, their families and professionals. They work to help people with Down’s syndrome reach their full potential. The charity’s Family Support Service provides home visits to families; training to teachers, coaches and carers; and support and information via telephone, e-mail and social media. Their Down’s syndrome Sports initiative provides dance, football, gymnastics, karate, swimming and tennis to children and adults with Down’s syndrome. They also provide a Parent Contact Service, which provides parent mentors to families needing information and support on various issues from schooling to independent living.
Every year Down’s syndrome Scotland has to raise 74 per cent of their income from the public in order to continue to provide support, information and services to families of a person with Down’s syndrome. With your help you can continue the important work of this worthy charity. For every £50 you raise, it allows the charity’s Family Support Service to visit a family at their home to provide them with much-needed support, information and services.
So please sponsor me and with your help we can make such a difference to adults and children with Down’s syndrome.
Donate from your mobile: text BUUZ99 (the amount) £10 to 70070