PLEASE DO NOT BUY ANYMORE RAFFLE TICKETS AS THE CAR HAS NOW BEEN WON. THANKS TO EVERYONE WHO TOOK PART. 

Here is my latest fundraising venture!

****FIRSTLY, IN CASE PEOPLE DON'T READ TO THE END, PLEASE PLEASE ENSURE THAT YOU LEAVE AS MUCH DETAILS AS POSSIBLE....ie. FULL NAME AND EMAIL ADDRESS. SOME PEOPLE HAVE LEFT NO DETAILS AND IT'S IMPOSSIBLE TO FIND OUT WHO THEY ARE. WHEN DONATING, TICK THE BOX THAT SAYS I CAN CONTACT YOU. I WOULD HATE TO NOT FIND THE WINNER****

My friend, Gillian Bayford, has extremely generously donated a brand new AUDI A1 Sport 1.0 TFSI 5-speed (67 plate) for me to raffle off to raise funds for research into MECP2 Duplication Syndrome which is the dreadful, cruel, severely life-limiting condition that my wonderful little boy, Blake, suffers from.

This raffle will be drawn in December and can be won by anyone is the UK. It can be delivered to where the winner lives or collected from the Audi garage in Dundee. The lucky winner will have a choice of colour and the option to add extras at their own cost if they so desire.

We are currently around 3 years away from clinical trials and need to fund the rest of the research to get us there. The research so far is proving very exciting and we hope to have full symptom reversal with the proposed treatment.

I watch my little boy suffer every single day and it breaks my heart. I watch his big sister play like an only child because her brother cannot play with her, talk to her, or laugh at her funny, quirky ways. She loves him dearly and wants nothing more than to play properly with him and of course, grow old with him and look after me in my old age!!

I have been fundraising since Blake was a few months old and between research and Blake's personal needs, have raised few hundred thousand. I really need to keep going so Blake can at least have a chance at a better, more fulfilling life. I adore Blake as he is....to me, he is utterly perfect, but I cannot help but think about all the things he misses out on in life. He is trapped in a body that doesn't work. He cannot express his feelings, desires or thoughts. He is not allowed to eat anything orally and is fed through a tube into his bowel. He has many other health problems relating to this awful condition, including daily seizures.

Last month, following a routine operation, Blake became very, very ill and one of my 2 options was to let him go. To me, that wasn't an option. And he proved that he didn't think that was an option either and he survived a second operation which could have killed the healthiest of people! He is a warrior, a fighter, my SUPERHERO! He wants to be here and while he continues to fight, so will I. I won't give up on my little soldier. 

I long to hear his voice, feel his little chubby arms pull me in for a cuddle, to see him eating his favourite milky bar pudding again and smack his lips in enjoyment. I want to hear him fight with Faye, moan at me for being embarrassing. I want so much for him and I don't intend to give up striving for the best for my boy.

So please, buy a virtual ticket, ONLY £25 for the chance to win a beautiful, brand new AUDI. In my opinion, it's worth a shot. Could be a wonderful Christmas present for someone! Each virtual ticket will be given a number and will be entered into an online raffle which will be drawn by an automatic generator to pick the winner.

*VERY IMPORTANT INFORMATION* please tick the boxes at the end when you donate that allow you to be contacted. Otherwise I may not know who you are if you win!! *

To read more about Blake and his condition, please look at the following links....

https://www.facebook.com/Blake-McMillan-Mecp2-Duplication-Syndrome-226615617485039/