Thanks for taking the time to visit my JustGiving page.
Centrica Barry Power Station Team - Elsa Mitchem, Ben Reynolds, Andy Davies and Steve Everitt are taking on the Trekfest Beacons 2014 Challenge on 7th June.
We will complete 29 miles in 12 hours crossing the highest peaks in the Beacons including Pen y Fan (886m), Corn Du (873m) and Cribyn (795m).
Our aim is to raise funds for a local child called Felix who needs our help.
Felix is a very happy and cheeky 22 month old with a very rare genetic brain disorder called lissencephaly and miller-dieker syndrome. Lissencepahly literally translates to ‘smooth brain’ meaning that during pregnancy his brain didn’t fully develop the full six layers a normal functioning brain has, but instead has only four. This condition impacts in ways many of us take for granted, like swallowing food for example or even holding up your own head.
Felix's mum and dad had almost 48 hours of normality with their newborn before being told that there was something wrong and then at 3 months having the diagnosis that their baby boy would never walk or talk and most children with this condition won’t see past infancy. In spite of this Felix continues to surprise his medical team and family. His smiles and cheeky grins leave an impression on everyone who meets him.
In order for Felix to make as much progress as possible, his family work closely with the NHS and a network of therapists to try to build his strength so that one day he may be able to roll over, hold a toy and even sit on his own. With the help of the NHS he is responding extremely well and always progressing but unfortunately the amount of time the therapists are able to give him just isn’t enough to meet his needs so we are raising funds for Tree of Hope to give him the best possible therapy and specialist equipment.
Thank you for supporting and helping us raise funds for Felix, a truly miraculous little boy!