M.E. is a complex neurological condition that devastates lives. The cause and biology of M.E. are poorly understood and research across the world is starved for funding. Approximately £1 per patient is spent on research per year on a condition that leaves 25% of sufferer's bedbound and unable to care for themselves for the rest of their lives. In context of spending on research for similar conditions, the amount spent in MS research in one year equates to 23 years for M.E - more research is done on MS in a year than has ever been done on M.E.
I'm swimming a mile in March to do what I can to help speed up progress for M.E. This equates to about 15 lengths per week. I know to many people this will not seem like a challenge, but functioning with M.E. is a daily challenge, which for me is a decade in the making. I started from being housebound and unable to gather enough strength hold my head up on bad days, so achieving something like this whilst working part time is like climbing Everest for a sufferer like me. Here's hoping I'll be holding my head high at the end of it.
Invest in ME Research is an independent UK charity finding, funding and facilitating a strategy of biomedical research into Myalgic Encephalomyelitis (ME or ME/CFS).The charity is run by volunteers - patients or parents of children with ME - with no paid staff.Overheads are kept to a minimum and all funds raised to go to promoting education of, and funding for biomedical research into, ME. Our efforts are focused on setting up a UK Centre of Excellence for ME which will provide proper examinations, diagnosis and in time treatment(s)/cure(s).
