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Melanie Gamble avatar
Melanie Gamble

Lily's Page

Raising as much money as we can for Nerve Tumours UK because our daughter Lily has Neurofibromatosis Type 1

82 %
£12,439
raised of £15,000 target
by 46 supporters
Donate

Nerve Tumours UK

We provide specialist advice & support to reduce the impact of Neurofibromatosis.

Charity Registration No. 1078790

Story

Lily is 6 and was diagnosed with NF1 when she was 3. Lily was born with a faulty kidney and during a Doctor’s visit to investigate complications, she was referred to hospital to investigate her café au lait marks and skin bumps (we now know these are tumours). Lily has multiple tumours on her torso and experiences leg pain and fatigue every day, the cause of which is currently being investigated. She has very poor fine and gross motor skills which can make school challenging for her. However, Lily is a real fighter and lets nothing get in her way!

Neurofibromatosis is a neuro-genetic condition affecting the nerve tissue, sufferers may live a long healthy life or they may be dealt with numerous medical conditions which include: skin lumps, large disfiguring benign tumours, tumours on the nerves of sight, curvature of the spine, brain and spinal tumours, internal tumours, increased risk of epilepsy and malformation of the long bones which can cause problems in children and may result in operations/amputation. Neurofibromatosis is more common than Cystic Fibrosis but still there is little known about it.

Every penny helps The Neuro Foundation Charity help families like us in the UK.

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