Camille Cook's Fundraising Page
Fundraising for Livability
Livability is the disability charity that connects people with their communities. We tackle social isolation and the barriers that can cause this in the lives of disabled and vulnerable people. We put the elements in place that all add up to connected lives and communities.
Charity Registration No. 1116530
Neuroacanthocytosis is a rare genetic disease that generally appears unexpectedly in a person's late 20's and soon makes walking, swallowing, speaking and hand-movements extremely difficult. NA occurs in the same part of the brain as Alzheimer's, Huntington's and Parkinson's disease and like these diseases NA gradually robs you of your independence.
It is difficult to imagine being a young 20's something full of life and ambition and to be suddenly stopped in your tracks. This is what happened to Alex: she was a beautiful, active young girl who studied at Tufts University and had big plans for where life might take her. Alex now lives with her parents and struggles to do the simple tasks we take for granted. Her courage and warmth are inspiring in the face of her situation.
I am thankful to be able to run this marathon for Alex and the Irvine Family.
I would like to ask for your support in this endeavor, running 26.3 miles seems crazy but running it with a purpose makes it a bit more sensible. Please consider if you could donate to the livability charity and this thanksgiving think of me running along but more importantly think of Alex and all those suffering from NA who are unable to run. Count your blessings, life is fragile.
PS Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me.