Walsall Healthcare Finance 1,000 miles · 1 June 2021

We are a small organisation committed to improving the lives of children and young people with Neurofibromatosis Type 1 by giving them the opportunity to meet others with the condition here and in the USA at specially arranged camps. We also aim to organise days out for families and fund research

Story

We wanted to support this young small charity, started by a UK parent five years ago, that helps families impacted by the most common rare disease that most have never heard of!

Rare diseases impact 3.5 million people in the UK, unfortunately that in total is not rare but still little is known about them, compared to other conditions. 

The childhood tumour trust is a network of thousands of families across the globe supporting each other, raising awareness, joining research and helping each other get medical support for the varied and complex issues individuals with neurofbromatosis may face. There are many issues people with NF may face but no two cases are the same so sharing and learning more is vital for the families.

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Help Carly Joseph

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Donation summary

Total
£175.00
+ £32.50 Gift Aid
Online
£175.00
Offline
£0.00

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