Many charities, particularly smaller ones, are struggling to maintain services because the cancellation of fundraising events due to the COVID-19 pandemic has caused a huge reduction in income. One such charity is The Prader-Willi Syndrome Association UK - which has proved a lifeline to our family over the past 21 years since my daughter Josie was diagnosed with the condition at just three weeks old.

All PWSA UK fundraising, family, clinic attendance, training and conference events in April and May (which is Prader-Willi Syndrome Awareness Month) have had to be cancelled. This could prove devastating to the charity. Some of the small team of dedicated staff have been furloughed, others are working reduced hours, but they are still doing their utmost to support people with PWS and their families and carers by phone and online. Lockdown for someone with PWS comes with a whole set of huge extra challenges, and families need the charity's help more than ever.

I'm pledging to post up a blog a day for 26 days to raise awareness of PWS. This may not be as impressive as running a marathon in my back garden, but keeping sane and sober enough to string a few words together on the page after home schooling my kids (and not murdering everyone) is a real life goal, people. To finish the challenge, on Day 26, I'm letting my 11-year-old boy loose on my hair with electric clippers.

I know this is a difficult time for everyone, and many of you are concerned about your finances and your future. But if 26% of my friends and family could spare £2.60 (the price of just one coffee that you've not bought during the lockdown), we could exceed my fundraising target. Obviously if you're normally a coffee shop junkie you could pledge the price of multiple coffees from all that money you're saving (don't tell me you've spent it all on toilet paper!).

Thanks for reading.