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Chris Cooke avatar
Chris Cooke

Running the Edinburgh Marathon for #teamMikaere and NKH Research

I am running the Edinburgh Marathon for Joseph's Goal because NKH needs a cure.

75 %
£759.22
raised of £1,000 target
by 32 supporters
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  • Event: Edinburgh Marathon Festival Full Marathon 2018, 27 May 2018

Joseph's Goal

Joseph Michael Kendrick is 7 years old and has Non-Ketotic Hyperglycinemia, a rare genetic disorder that affects one in 60,000 new-borns. The condition is so serious that less than 500 people in the world are living with it. Joseph’s Goal has been set up to raise funds and awareness into NKH.

Charity Registration No. 1151548

Story

My friends, Elly and Sam, are parents of Mikaere (Kai), who was born with Nonketotic Hyperglycinemia (NKH), a rare metabolic disorder with no cure and limited treatment options.

I'm running a marathon mostly because I'm awesome but also to raise money for Joseph's Goal, the UK's only NKH charity.  

If you sponsor a kilometre and donate £20, I’ll have reached my goal by the time I’ve run the marathon. 

There are lots of deserving charities, this one has a direct impact on changing the lives of people close to me, all donations will go to Joseph's Goal, the UK's only NKH charity, and make a real difference.

More information about Mikaere at www.teammikaere.com and on instagram @teammikaere.  For more information about NKH visit www.foundationnkh.org

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