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Running the Edinburgh Marathon for #teamMikaere and NKH Research

Chris Cooke is raising money for Joseph's Goal
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Edinburgh Marathon Festival Full Marathon 2018 · 27 May 2018 ·

Joseph Michael Kendrick is 17 years old and has Non-Ketotic Hyperglycinemia, a rare genetic disorder that affects one in 60,000 new-borns. Joseph’s Goal is to raise funds and awareness into NKH research, and one day find a cure.

Story

My friends, Elly and Sam, are parents of Mikaere (Kai), who was born with Nonketotic Hyperglycinemia (NKH), a rare metabolic disorder with no cure and limited treatment options.

I'm running a marathon mostly because I'm awesome but also to raise money for Joseph's Goal, the UK's only NKH charity.  

If you sponsor a kilometre and donate £20, I’ll have reached my goal by the time I’ve run the marathon. 

There are lots of deserving charities, this one has a direct impact on changing the lives of people close to me, all donations will go to Joseph's Goal, the UK's only NKH charity, and make a real difference.

More information about Mikaere at www.teammikaere.com and on instagram @teammikaere.  For more information about NKH visit www.foundationnkh.org

Donation summary

Total
£759.22
+ £130.31 Gift Aid
Online
£759.22
Offline
£0.00

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