Team Celine

Deborah Brewbaker is raising money for Sturge-Weber Foundation

Participants: Kevin Brewbaker

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SWF Million Miles for Sturge-Weber Syndrome · 1 April 2021 to 30 June 2021 ·

Children's Hospital of Michigan CCN Team for SWF Million Miles

Story

Celine Gerry Brewbaker was born with Port Wine Stains that cover 40% of her body on August 10, 2016. She was diagnosed with Sturge-Weber Syndrome two days later, which is caused by a rare gene mutation during the first trimester of pregnancy. Celine’s brain, left eye, right hand/arm, and leg, are all affected by this. She started having medically resistant seizures when she was 13 months old and underwent a hemispherectomy in September, 2019, where her left side of her brain was detached from the right. This has stopped her seizures, but her right hand/arm partially paralyzed. Her right side of her body is weaker than her left, due to SWS affecting the left side of her brain. Please help us raise money for the Sturge-Weber Foundation who has been so good to Celine these past 4.5 years! They were the first people to truly help us when we were given her diagnosis. 

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