However, when he was 4 years old Ben developed raised intracranial pressure and without surgery could have lost his eyesight and could have developed brain related issues.  It was a scary time in our lives but we were lucky to have amazing surgeons who undertook "posterior vault reconstruction surgery" which involved removing the back of his skull, cutting it into pieces, and creating a new skull, like a jigsaw puzzle, which would allow more space for his brain to grow.  After a 7 hour operation at CHOP in Philadelphia, we were told everything was going to be alright by the craniofacial team and 9 years on Ben has not looked back! 

Headlines has always been there for us and now as the Chair (Wendy) and Treasurer (Charles) of this charity we are wanting to push ourselves to the limit and be brave just like Ben and others have been, and raise much needed funds.

By jumping out of a plane at 10,000 feet  we will also launch Cranio Awareness Month which aptly starts on 1st September 2019 - the day of the big SkyDive.

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