Thanks for taking the time to visit my JustGiving page.

Our son had a rare genetic disorder know as Charge Syndrome.  Unfortunately our boy suddenly passed away on the 19th April 2023. He had only just had his first sleepover with CHAS and the team at Robin House the weekend before.

We thought the services provided with CHAS only supported us while Charlie was alive, but infact their support was only just beginning after Charlie passed.

Our boy was transferred to a specially adapted room know as a rainbow room to preserve his body, but we were also invited to stay on site in a hotel like room for 3 weeks until Charlie was transferred for his final journey for the funeral.

We couldn't have got through this without the amazing people at this organisation so we are going to give something back!