My younger sister Rowena died last year of SUDEP, she was 28 weeks pregnant and we lost the baby too, she was just 32.

Although most people with epilepsy live long and healthy lives, epilepsy is one of the top-ten causes of early death. At SUDEP Action, we focus our efforts on providing tools to help keep people safe and on the priorities that bereaved families tell us are important: To prevent deaths; To be supported; To be involved.We have won national and international honours for our achievements to date, but we recognise there is much more work to do, and this is why we need your donations. With your help we can strive to make a difference.