Story
My child is taking part in Birmingham Children's Hospital Charity's Kids Summer Challenge to complete 31 Miles throughout August. Whether you can donate £5 or £50 your donation will make a huge impact on the 100,000 sick kids treated at the hospital every year. Thank you for donating.
Grace’s story.
Shortly after birth Grace was diagnosed with Osteogenesis Imperfecta (OI) - a genetic bone condition affecting around 1 in 15,000 people. OI or ‘brittle bones disease’ as it is commonly known is characterised by fragile bones that break more easily. Other symptoms can include hearing loss, fatigue, joint laxity, curved bones, scoliosis, blue sclerae, dentinogenesis imperfecta (brittle teeth) and short stature amongst other medical problems.
Since diagnosis Grace has been under the care of the fantastic OI team at BCH 🎈and in January 2024 Grace began receiving IV bisphosphonate infusions. The aim of this treatment is to improve bone density (less fractures 🤞🏼) and reduce pain and fatigue.
Birmingham Children’s Hospital care for approximately 100,000 children and young people from across the country every year. The work they do really is amazing and the care they provide invaluable to families like ours. This summer Grace has decided to take part in their ‘31 miles in August kids summer challenge’, so that more children like her can receive their incredible care.
Thank you in advance for your donations. It really does make a difference and means the world to Grace and BCH families like ourselves.
