As many of you know, after years of trouble with this condition, I was diagnosed with urticarial vasculitis this September, which effects one in 2 million people. There is no cure but with the right treatment it can be managed.

When someone is diagnosed with a rare condition, they often find that there is not much information about what their diagnosis means. This can be hard to find information and support online when there are so few people diagnosed with a condition, as there is much less research being done.

To honour rare disease day (28th February) 2019, I've decided to spend 24 hours throughout march on an excersise bike in my local gym to raise vital funds for vasculitis UK.


http://www.vasculitis.org.uk/about


It's people like us that can make a difference, contributing funds vital to this charities research. If anybody can spare a few pounds or share my page I'd be really thankful x

https://www.nhs.uk/conditions/vasculitis/