Chloá was born with a rare condition called Craniosynostosis her type is sagittal synostosis.
Craniosynostosis is a rare skull problem that causes a baby to be born with, or develop, an abnormally shaped head. The irregular skull shape in craniosynostosis can cause persistent headaches, learning difficulties, eye problems and other symptoms. Most symptoms develop in later childhood. The symptoms of craniosynostosis usually result from increased pressure within the skull. Craniosynostosis is the result of the premature fusion of different sections of the skull, affecting an estimated 1 in every 1,800 to 3,000 children.
On 29th of september 2014 Chloá was born by planned C-section, her condition hadnt been picked up through the pregnancy and had been missed after her birth. It had been pointed out by family members to me at the time but it didnt matter how she looked, in my eyes (in regards to whats a normal head shape and what isn't) she was perfect. Few days later i questioned the doctors about her head shape they had palmed me off saying it was to do with her birth. I understand this can be the case with passing through the birth canal but she was a planned c-section. I kept on questioning different medical teams, health visitors, gps and got the same reply, or that her hair will grow and cover it. Finally I found something online that showed what chloá had and a full year later a gp refererd me to paediatricians where she then got a CT- scan to confirm the diagnosis.
On the 2nd September 2016 Chloá underwent 8 hours of skull reconstruction surgery at Alder hey children's hospital Liverpool. The team and staff were amazing 😀. It is now 6 months from surgery she has came on brilliant, her scar has healed beautifully and is well hidden by her hair.
My purpose is to help raise awareness of craniosynostosis something me and my extended family memebers or even some health professions knew nothing about and raise money for a charity called headlines. Headlines is a charitable organisation based in the UK which aims to provide support and help to all those affected by Craniosynostosis (both syndromic and non-syndromic) and associated conditions.
This is something we as a family hold close to our heart and ask If you could please be generous enough to donate no matter how big or small it would be grately appreciated.