EDS is a connective tissue disorder which effects many parts
of the body; Joints, organs, skin etc. 

It took a long time for me to receive a diagnosis due to the complex nature of the condition which lead to my living in pain and uncertainty for a long time.

EDS for me is a chronic condition which presents with
symptoms such as musculoskeletal pain, Mitral Valve prolapse, Postural
Orthostatic Tachycardia Syndrome, chronic fatigue but can present in others in
entirely different and various ways and intensity. 

This is why research is so important for this condition as
it is often under diagnosed due to the variety of symptoms patients present
with.  Often we are treat for the separate symptoms which can cause
further damage if the full diagnosis is not understood. 

Join The Ehlers-Danlos Society in celebrating May as Ehlers-Danlos Syndrome/Hypermobility Spectrum Disorder Awareness Month and find your personal, team, or community challenge. We are challenging you to help spread EDS/HSD awareness by completing as many of the challenges as you can during the month of May. Start your challenge today!Every dollar raised during the month of May will count towards one point. You can also receive a point for each Act of Awareness you complete. You may use those points to go towards exclusive May Awareness incentives.