This JustGiving page has been set up on behalf of my sister Eliza, aged 20, to raise funds for Royal Papworth Hospital, the home of transplant research and ground breaking transplant procedures, and to increase awareness of the NHS Organ Donation Register.
Eliza was born with a rare genetic heart condition called Danon's Disease, not diagnosed until she was 12 and in hospital having contracted a respiratory virus. Up until the age of 18 Eliza was able to live a relatively normal life, completing her A-levels and embarking on a degree at the University of Falmouth. Unfortunately throughout the first term at University her health deteriorated considerably, forcing her to put her education on hold. Since then Eliza's cardiomyopathy has progressed causing her to go in to heart failure.
Due to the severity of her heart failure back in October, the cardiologists at Royal Papworth decided that Eliza’s best chance of survival was to have a heart transplant and so she was placed on the Heart Transplant List. The last two months have not been easy for Eliza with two failed transplant attempts, both cancelled at the last minute, followed by a severe bout of pneumonia.
In the last week of January, once Eliza had recovered from the pneumonia, she was admitted to Royal Papworth and placed on the Emergency Heart Transplant List. Owing to Eliza’s rarer blood type (O-negative) and height, the two main factors used to match the donor heart with the receiver, it is likely that she will have to wait longer than most for a transplant.
Eliza initially came up with the idea with her best friend Lani, of raising funds for Royal Papworth Hospital through the Torbay Half Marathon, and this JustGiving page has been set up on her behalf for the following fundraisers:
Nigel Bell (Eliza's Dad), Molly Pavey, Lani Lawrence, Chris Durham, Elana Albery, Karen Albery, Aidan Tolley, Keith Duffy, Jason Eddy, Colin Bell, Katie Squires, Gemma Tooze.
When donating though this page, please kindly name the fundraiser you are supporting via the comments.
Our aims are to raise £30,000 for the Royal Papworth Hospital Charity's DCD Transplantation Fund. We have chosen such a high target as this is the cost of one Transmedic portable perfusion machine. These machines, which can only be used once are an essential element of transporting a DCD heart between the donor and recipient. At this time the NHS does not support the DCD transplant program and therefore it is solely funded by the Royal Papworth Hospital Charity.
For information on the organ perfusion equipment we are funding see link below:
For more information on organ donation and how to register (it only takes two minutes…) please follow the link below:
This JustGiving page will also serve as a central fundraising hub for several more events that friends and family will be taking part in during the coming year.
The events planned so far are as follows:
17th March- Melbourne Trivia Charity Evening (Ed, Mish, Rueben and Friends)
13th April - Truro Racket Ball Charity Open (Hosted by Nigel and Pete)
3rd May- Penzance to Papworth. 24 hour cycle non stop in a three man relay (Nigel with two friends Martin Higman and Philip Northcott from Truro Cycling Club)
8th June – Cycle Event London to Utrecht (Chris and friends)
22nd June – Super Spartan Adventure Race (Chris, Aidan, Deaglan)
23rd June – Torbay Half Marathon (Nigel, Chris, Lani, Molly, Bram, Elana, Karen, Katie, Gemma, Colin, Jason, Mark H, Aidan, Kieth, Jodi, Vinnie, Amber, Adam, Becky, Loz, Timmy G! )
Sponsored walks: Cambridge, Devon, Cornwall (Dates to be announced)
If anyone would like to help fundraise and host their own event please get in contact at firstname.lastname@example.org. We are becoming one big fundraising family which means more the merrier!