Thanks for taking the time to visit my JustGiving page.

It's that time of year again when I write to tell you about this year’s Fragile X challenge and ask you for your generous support. This year will be my last for a few years so I aim to go out with a bang, hopefully not totally out.

Myself and three wonderful (foolhardy) friends; George, Barney and Sam are planning to climb the three peaks. However, being the plucky (witless) souls that we are we decided to aggrandise the challenge to boost our ratings and get you all to hopefully dig a little deeper. While climbing the three peaks we will be carrying with us a rowing machine (cumbersome) and a few weights (unwieldy). Not just for fun but to allow us, when we get to the top (breezy), to row the height of the hill (Stratosphrically high mountain) and then (after a snack) also lift the height of the peak in KGs. Yes; Climb, row, snack, lift, repeat. 3 times. One. After. The. Other. 36 hours

If that’s not enough to have you horrified enough, here are the stats;

1. Ben Nevis - 4,413 ft - Climb it, row it, snack on it, lift it.

2. Scafell Pike - 3,209 ft - Climb it, row it, snack on it, lift it.

3. Snowden - 3,560 ft - You get the idea

Broken.

All this of course, is for a cause dear to my and my family’s heart. As you all know, our son Harrison was diagnosed with Fragile X syndrome at the age of two. Fragile X is the most common known cause of learning disability, leading to learning, social, language, attentional, emotional and behavioural difficulties. Early diagnosis and befitting intervention are key to ensuring children and adults can reach their full potential and live their best life.

A diagnosis like this can be overwhelming; the Fragile X society provided us a support system. But not only support, a road map enabling us to navigate each milestone, advice equipping us to locate the best help available to him, education empowering us to foster the most nurturing environment for him. They were invaluable. They are the only charity of their kind in the UK; they have three primary aims; to provide information and practical guidance to individuals and families living with Fragile X; to educate and inform the public and professionals in order to raise awareness and understanding of the syndrome and to encourage and support research into all aspects of Fragile X.

I cannot put into words how essential the support of the Fragile X society has been and continues to be to our family. I want to raise as much money as possible to help ensure that their services are available to other affected families.

Dig Deep

Many thanks and much love

Chris, George , Barney and Sam

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