Thanks for taking the time to visit my JustGiving page.
I seem to have grown a rather long beard by mistake. My son had a great idea that I should shave it off for charity and we all agreed. My daughter has a very rare condition called Juvenile Dermatomyositis (It's taken us 3 years to pronounce this correctly) It's a very little understood condition that affects 2-3 children per million.
Message from my daughter:
I would love it if you could help us achieve our goal. The hospitals I go to are great, however a cure would be fandabydosy because I hate the treatment.